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10 Tips to Having an Illness Support Group that Isn't Depressing

By: Lisa Copen


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If you live with chronic pain or an illness, odds are that you have attended a support group at least once since you were diagnosed. Did it feel something like this?

You felt awful the entire day but you decided to get in the car and go to the support group anyway. You thought it would be good for you. It took forever to find the building at the hospital and then you ended up parking what seemed like a mile from the suite number. You found a chair that smelled like old sweat and smoke and hoped somehow you would find some encouragement. But an hour later you're ready to make dash for the door. Everyone seems to be so depressed! And too many people want to either sell you a juicer that is sure to cure your problems, or tell you about every surgery they've had since 1977.

Aren't support groups supposed to be beneficial in coping with illness?

The answer is yes! Studies completed by Dr. David Spiegel have concluded that support groups do in fact improve the quality of life of those who are willing to attend. Recent studies (CANCER, Sept 2007) have show that support groups do not actually increase the lifespan of one who lives with cancer. But regardless, by having one's feelings about her illness validated, her skills of coping with chronic illness are definitely more improved.

You may have attended a support group in the past or perhaps you are looking for leadership ideas for one you are starting. Regardless of how long you have (or have not) participated in one, it's likely that you've seen how quickly the groups can move from being an honest and sharing place to a session of complaints and even quarreling. Would you like some fresh icebreaker games for small groups to perk people up?

Here are 10 tips to help you make your chronic illness support group include some laughter as well as just the discussion of challenges. And these ideas will work for any groups, from a Dementia support groups in Dallas to an Ebsteins Anomaly support group. And these ideas are perfect to have when you are creating a proposal for starting up a support group.

1. Make faces on sticks. It may sound silly, but sometimes getting back to basics works best. Cut out smiley faces and sad faces and glue them on each side of a stick or plastic knife. As people take turns sharing about their week, make sure they can show both sides of the faces. For example, Kim may hold up the sad face while she says "getting ready for surgery and all the therapy afterwards has been stressful." (Then she can flip the face over to a smiley face) "But I've really appreciated how many family members has volunteered to help with childcare."

2. Rethink your concept of what counts as indoor games for small groups. For example, have everyone bring things for a JOY box and then have everyone choose something to take with them out of it at each meeting. It could be a rubber frog, a favorite poem, a note someone sent, an encouraging book, a silly or sentimental DVD. Have everyone return them by the next meeting to share again.

3. Let your small group write a silly theme as their next icebreaker. If anyone plays the guitar, have them help. You can pick a well known song. Write your own lyrics. Have fun with it and open or close each meeting with it. Comedian Anita Renfroe has a fun parenting song to get you brainstorming.

4. Find some goofy props to bring to your meeting. Don't make anyone feel they must use or wear them. (Forcing someone to wear bug antennas may scare them away for good.) But make sure they are available to encourage light-hearted moments before discussing the depressing reasons you are there. You can find hundreds of items for a reasonable price at Oriental Trading Supply.

5. Though it can be a challenge, don't let your group tune into a platform for any member to talk continuously about his or her disease, the treatments, alternative treatments and even complaints. If someone tends to dominate the conversation, let your group know you are implementing the use of a timer to make sure everyone has equal opportunity to share. Set whatever guidelines you wish, for instance, you could allow people to vent for sixty seconds on any topic. Or they could share about an alternative treatment they've found useful, but when the timer rings, time is up!

6. Ask everyone to bring an encouraging item to include in a gift basket for someone in need who is either unable to attend the group or not even a member. Put your heads together about what kinds of items to include. You can find over five-hundred simple ideas in the book "Beyond Casseroles." Remember personal notes mean a lot, even from people you don't know, so ask people to write a sentence or two to include with the item.

7. Go out for one evening just for fun. If everyone want to act their age you may consider a sit down restaurant, or you can head on over to Chuck E. Cheese's or Build-A-Bear. It's a terrific icebreaker for small groups since people who haven't opened up in the group may find this is a more relaxed environment. Consider including family members to participate.

8. Have items on hand that will encourage people to thrive despite their illness. For example, National Invisible Chronic Illness Awareness week has fun things like bumper stickers, pins, mugs and stickers that have themes like "My illness is invisible but my hope shines through."

9. Listen to a recording of potential guest speakers before inviting them to speak if possible. Some can be quite depressing. Let guest speakers know that you'd like their presentation to be on the positive side despite the topic of illness. Tell them they are welcome to tell a joke, pass out props, or whatever will keep people listening and also encouraged.

10. Sit down with your group and discuss what kinds of things you could do to create change. Illness often robs people of feeling useful. Even though your group may not be able to physically walk for a charity event, you could work at a registration table, or distribute water. Teens with chronic illness are often a great inspiration in getting a support groups involved in a higher calling. Remind people they can be part of something positive.

Support groups can provide some of the most influential relationships that can help one live successfully with chronic illness. The environment of the group, however, can make or break its usefulness. With these few simple tips, your group can be a refuge and a place of true relaxation, creating an special group for people to create friendships that could just last as long as the illness, perhaps indefinitely.

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Instant download of more ideas for icebreakers for small groups with your free gift of 200 Ways to Encourage a Chronically Ill Friend from "Beyond Casseroles" by Lisa Copen. Just sign up for a weekly encouragement ezine, HopeNotes.



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